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Deaf-Blind: Family Support and Connections

Parenting a child with a hearing and vision loss or deaf-blindness can be challenging, isolating and overwhelming from the shock of the initial diagnosis or diagnoses to the search for supports, answers and resources. Even what to call it can be confusing - combined vision hearing and vision loss, dual sensory diagnosis, or deaf-blindness?   It can also be a deeply wonderful and rewarding experience.  Each family has its own journey at its own pace.

As families move forward into uncharted territory, it is important to know you are not alone and there are other families in Colorado and across the country (and the world!) who also have a child with deaf-blindness. We can all learn from one another.  It is often helpful to talk to other families and professionals trained in deaf-blindness.

The diagnosis of combined hearing and vision loss is a low incidence disability, which means the numbers of identified children are low.  There are approximately 10,000 children and youth identified across the country who are deaf-blind. Just like other states, our State Deaf-Blind Project, named the Colorado Services for Children and Youth with Combined Vision and Hearing Loss Project, receives federal funding that must be used to connect, educate, and support families.  The goal is to support and empower families to survive and thrive.

Parents, as you have the time and as you are ready, take the time to search this website for the resources that can help you. Read the Colorado Project’s Fact Sheets or other posted information, call the project for a home or school visit, attend an event sponsored just for parents or the whole family or Summer Institute, borrow books or videos from the Lending Library, and/or reach out to other parents affiliated with the project. It all exists for you, your child and your family.  We hope you will reach out and connect!


Sharing the Journey: Connecting families with combined vision and hearing loss in Colorado

Parenting a child with a hearing and vision loss can be challenging, isolating and overwhelming from the shock of the initial diagnosis to the search for supports, answers and resources. Even what to call it can be confusing - combined vision hearing and visually loss, dual sensory diagnosis, or deafblindness?

Each family has its own journey at its own pace. But as we stumble along this uncharted territory it is important to know two things: you are not alone and there are other families for whom the details are different but the diagnosis the same. We can all learn from one another if we reach out. How to do that?

 

The second essential point is that the diagnosis of combined hearing and vision loss is a low incidence disability and receives federal funding used to connect, educate, and benefit families, enabling us to reach our potential - to provide technical assistance to our child at home and in school and to empower us as families to survive, and yes, even thrive.

As you have the time and as you are ready, take the time to search this site for the resources that can help you. Read Vibrations, call the project for a home or school visit, attend a Family Learning Retreat or Summer Institute, borrow books or videos from the Lending Library, or reach out to the parents affiliated with the project. It all exists for you, your child and your family.

Reach out and connect and you will reap the benefits!


Phone Call Series - Family

FINDING CALM IN THE CHAOS

The Western States Deaf-Blind Projects of Arizona, Colorado, Idaho, Nevada, New Mexico, Oregon, Utah, Washington, and Wyoming offered a parent webinar/phone calls related to stress, self-care, resilience, and happiness on April 12, 2015.  The topic was "De-stress Your Life: Building Resiliency and Optimism" and the presenter was Dr. Nancy Eldredge from Tucson, Arizona

Dr. Eldredge provided strategies to help build and recover resiliency, to improve self-care, and to cultivate optimism.  She introduced a short discussion of the role of neurobiology in contributing to burn-out when people are under constant stress. She provided further practical techniques that mitigate chronic stress and help us bounce back from stress and promote healthy and happy living.

Recorded Webinar Link

Handouts:


Family Connections


PEP Conferences

CDE sponsors the Parents Encouraging Parents Conferences, which are family centered conferences designed to offer support, information, and education to parents with children who have a disability, ages birth to 21 years, and professionals.

View more information and download a PEP application.


For more information about the Colorado Services for Children and Youth with Combined Vision and Hearing Loss project, please contact:

Tanni Anthony
Phone: (303) 866-6681

Gina Herrera
Phone: (303) 866-6605

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